Please use this identifier to cite or link to this item:
https://hdl.handle.net/2440/136587
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Type: | Journal article |
Title: | Pain coping tools for children and young adults with a neurodevelopmental disability: A systematic review of measurement properties |
Author: | Smith, N.L. Smith, M.G. Gibson, N. Imms, C. Thornton, A.L. Harvey, A.R. |
Citation: | Developmental Medicine and Child Neurology, 2023; 65(3):318-328 |
Publisher: | Wiley |
Issue Date: | 2023 |
ISSN: | 0012-1622 1469-8749 |
Statement of Responsibility: | Nadine L. Smith, Meredith G. Smith, Noula Gibson, Christine Imms, Ashleigh l. Thornton, Adrienne R. Harvey |
Abstract: | Aim: To systematically identify and evaluate the measurement properties of patient-reported outcome measures (PROMs) and observer-reported outcome measures (parent proxy report) of pain coping tools that have been used with children and young adults (aged 0–24 years) with a neurodevelopmental disability. Method: A two-stage search using MEDLINE, Embase, CINAHL, Web of Science, and PsycInfo was conducted. Search 1 in August 2021 identified pain coping tools used in neurodevelopmental disability and search 2 in September 2021 located additional studies evaluating the measurement properties of these tools. Methodological quality was assessed using the COnsensus-based Standards for the Selection of Health Measurement INstruments (COSMIN) guidelines (PROSPERO protocol registration no. CRD42021273031). Results: Sixteen studies identified seven pain coping tools, all PROMs and observer-reported outcome measures (parent proxy report) versions. The measurement properties of the seven tools were appraised in 44 studies. No tool had high-quality evidence for any measurement property or evidence for all nine measurement properties as outlined by COSMIN. Only one tool had content validity for individuals with neurodevelopmental disability: the Cerebral Palsy Quality of Life tool. Interpretation: Pain coping assessment tools with self-report and parent proxy versions are available; however, measurement invariance has not been tested in young adults with a neurodevelopmental disability. This is an area for future research. |
Keywords: | Humans Cerebral Palsy Pain Reproducibility of Results Adaptation, Psychological Psychometrics Quality of Life Child Young Adult Self Report Patient Reported Outcome Measures |
Description: | First published: 16 September 2022 |
Rights: | © 2022 The Authors. Developmental Medicine & Child Neurology published by John Wiley & Sons Ltd on behalf of Mac Keith Press. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made. |
DOI: | 10.1111/dmcn.15410 |
Grant ID: | http://purl.org/au-research/grants/nhmrc/1171758 |
Published version: | http://dx.doi.org/10.1111/dmcn.15410 |
Appears in Collections: | Paediatrics publications |
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hdl_136587.pdf | Published version | 442.53 kB | Adobe PDF | View/Open |
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